Si tiene interés en el estudio, algo no le ha quedado claro o tiene alguna pregunta sobre el estudio EDELIFE, póngase en contacto con el médico responsable del estudio en su país o con el investigador coordinador, el Dr. Schneider. Le facilitarán más información sobre el estudio, incluida la hoja de información completa en la que se detalla todo el estudio si usted lo desea.
Además, puede ponerse en contacto con su asociación local de pacientes o con EDIN, la asociación internacional de pacientes.
Médicos del estudio
Alemania
Erlangen
Professor Holm Schneider
Universitätsklinikum Erlangen Zentrum für Ektodermale Dysplasien Erlangen Loschgestraße 15 91054 Erlangen
To provide the best experiences, we use technologies like cookies to store information. Consenting to these technologies will allow us to process data such as browsing behavior or unique IDs on this site. We do not collect any personal data. We only use cookies for statistical purposes which we do not share. You can disable the collection of these cookies in accordance with the GDPR.
Functional
Siempre activo
The technical storage or access is strictly necessary for the legitimate purpose of enabling the use of a specific service explicitly requested by the subscriber or user, or for the sole purpose of carrying out the transmission of a communication over an electronic communications network.
Preferences
The technical storage or access is necessary for the legitimate purpose of storing preferences that are not requested by the subscriber or user.
Statistics
The technical storage or access that is used exclusively for statistical purposes. We do not share statistics.The technical storage or access that is used exclusively for anonymous statistical purposes. Without a subpoena, voluntary compliance on the part of your Internet Service Provider, or additional records from a third party, information stored or retrieved for this purpose alone cannot usually be used to identify you.
Marketing
The technical storage or access is required to create user profiles to send advertising, or to track the user on a website or across several websites for similar marketing purposes.