If you are interested in the study, if anything is unclear or if you have any questions about the EDELIFE study, please contact the doctor responsible for the study in your country or the Coordinating Investigator, Prof Schneider. They will then share more information with you on the study, including, should you wish to, the full Information Sheet that details the whole study.
You can also contact your local Patient Association or EDIN, the international patient association.
Prof. Dr. med Christine Bodemer
Hôpital Necker Enfants Malades 149 rue des sèvres 75015 Paris
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