Need more information?
If you are interested in the study, if anything is unclear or if you have any questions about the EDELIFE study, please contact the doctor responsible for the study in your country or the Coordinating Investigator, Prof Schneider. They will then share more information with you on the study, including, should you wish to, the full Information Sheet that details the whole study.
You can also contact your local Patient Association or EDIN, the international patient association.
Prof. Dr. med Angus Clarke
Institute of Medical Genetics,
University Hospital of Wales,
Cardiff CF14 4XN
University of California
Department of Ob, Gyn & RS, Box 0132
490 Illinois Street, Floor 10, Room 102L
Prof. Dr. med. Holm Schneider
+49 91 3185 33775
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