Edelife
Contact
If you are interested in Edelife, please contact a doctor responsible for the study from the centers below or the Coordinating Investigator, Prof Schneider. They can share more information with you.
Study doctors
Coordinating Investigator
Prof. Dr. med. Holm Schneider
holm.schneider@uk-erlangen.de
+49 91 3185 33775
US
St Louis
Dr. med Dorothy Katherine Grange
Washington University
660 South Euclid Ave
St. Louis, MO 63110
660 South Euclid Ave
St. Louis, MO 63110
grangedk@wustl.edu
+1 314 454 6093
US
Los Angeles
Dr Ophir Klein
Cedars-Sinai Medical Center
8700 Beverly Blvd
Los Angeles, CA 90048
8700 Beverly Blvd
Los Angeles, CA 90048
clinicaltrials@cshs.org
+1 310 423 8965
France
Paris
Prof. Dr. med Christine Bodemer
Hôpital Necker Enfants Malades
149 rue des sèvres
75015 Paris
149 rue des sèvres
75015 Paris
christine.bodemer@aphp.fr
+33 1 44 49 43 37
France
Paris
Dr. Smail Hadj-Rabia
Hôpital Necker Enfants Malades
149 rue des sèvres
75015 Paris
149 rue des sèvres
75015 Paris
smail.hadj@inserm.fr
+ 33 1 44 49 46 68
Germany
Erlangen
Professor Holm Schneider
Universitätsklinikum Erlangen
Zentrum für Ektodermale Dysplasien Erlangen
Loschgestraße 15
91054 Erlangen
Zentrum für Ektodermale Dysplasien Erlangen
Loschgestraße 15
91054 Erlangen
www.zeder.uk-erlangen.de
holm.schneider@uk-erlangen.de
+49 9131 8533775
Germany
Leipzig
Prof. Dr. med Holger Stepan
Universitaetsklinikum Leipzig
Departement für Frauen und Kindermedizin
Liebigstrasse 20a
04103 Leipzig
Departement für Frauen und Kindermedizin
Liebigstrasse 20a
04103 Leipzig
holger.stepan@medizin.uni-leipzig.de
+49 3419723595
Italy
Milano
Prof. Dr. Riccardo Cavalli
IRCCS Ca' Granda Ospedale Policlinico
Dermatologia Pediatrica
Via Pace 9
20122 Milano
Dermatologia Pediatrica
Via Pace 9
20122 Milano
riccardo.cavalli@policlinico.mi.it
+39 0255035355
Italy
Milano
Michela Brena, MD
Pediatric Dermatology Unit,
Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico
Dept. of Clinical Sciences and Community Health
Via Pace 9,
20122 Milano
Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico
Dept. of Clinical Sciences and Community Health
Via Pace 9,
20122 Milano
michela.brena@policlinico.mi.it
+39 0255035355
Spain
Murcia
Dra. med Encarnación Guillén Navarro
Hospital Clinico Universitario
Virgen de la Arrixaca
3ª planta, Pasillo B, Calle Campo nº 12
30120 El Palmar
Virgen de la Arrixaca
3ª planta, Pasillo B, Calle Campo nº 12
30120 El Palmar
guillen.encarna@gmail.com
+34 968 92 94 29
United Kingdom
Cardiff
Prof. Dr. med Angus Clarke
Institute of Medical Genetics,
University Hospital of Wales,
Heath Park,
Cardiff CF14 4XN
Wales, UK
University Hospital of Wales,
Heath Park,
Cardiff CF14 4XN
Wales, UK
clarkeaj@cardiff.ac.uk
+44 2920 742577
(email preferred)
