A prenatal study
for Ectodermal Dysplasia (XLHED) affected boys
Welcome!
This website is dedicated to families looking for information about EDELIFE.
If you came to visit this web site, it is very likely that you are wondering whether you can take part in the EDELIFE research study.
This Web site is meant to explain to you what the EDELIFE study is about and what commitment it will require from you.
What you need to know about the EDELIFE study
What’s new with the EDELIFE study?
Clinical study is now open in the UK
First pregnant woman to have joined the study in the US and received investigational treatment.
Clinical study is now open in the UK
Clinical study is now open in the UK (Cardiff).
Clinical study is now open in the UK
Clinical study is now open in the US -St Louis (MO).
Clinical study is now open in the UK
First pregnant woman to have received the 3 rounds of investigational treatment injections.
Clinical study is now open in the UK
Clinical study is now open in France, Germany, Spain and Italy.
Clinical study is now open in the UK
Clinical study is now open in Germany (Erlangen).