Edelife

Resources

Contact

Video: Ectodermal Dysplasia

Watch this short video about the disease, its burden and the progress of science.

Web resources

Patient associations

Associazione Nazionale Displasia Ectodermica Logo

Italy

Associazione Nazionale Displasia Ectodermica
www.assoande.it
segreteria@assoande.it
Asociación de Afectados por Displasia Ectodérmica Logo

Spain

Asociación de Afectados por Displasia Ectodérmica
www.displasiaectodermica.org
infos@displasiaectodermica.org
National Foundation for Ectodermal Dysplasias Logo

US

National Foundation for Ectodermal Dysplasias
www.nfed.org
mary@nfed.org
For a country-specific listing of other international patient groups please check:
edinetwork.org/international-groups
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